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Supporting children and young adults with epilepsy

Address details
Organisation Young Epilepsy
Address St Piers Lane Lingfield
RH7 6PW
Surrey
Contact details
Email info@youngepilepsy.org.uk
Phone 01342 832243
Website http://www.youngepilepsy.org.uk

Diaries
Keeping track of your epilepsy can help doctors to see if there is a pattern to when your seizures happen. This will help them understand and provide options on how seizures can be controlled.
Our seizure diaries are free, you just pay for postage and packaging.

Magazines
if you're interested in learning more about epilepsy, whether you have the condition or not, our 'All about epilepsy' magazines provide facts and stats about epilepsy, information on types of seizures and what precautions you can take to stay safe.

Young Epilepsy app
We understand that no two people with epilepsy are the same. That’s why we have created an innovative, free app that can be tailored to the needs of each young person or child with epilepsy. Download our free app which helpful for tracking seizures and recording medications. It includes a video function so the seizure can be captured which help with diagnosis and medication.

Helpline
If you would like to know more about epilepsy, treatments, causes or for general information about medication - we're here to answer your questions.
Talk privately with our experienced team in complete confidence, we can also provide advice and support information. Simply contact us on:
Phone: 01342 831342, between 9am - 1pm, Monday to Friday.
Email: helpline@youngepilepsy.org.uk
Text: 07860 023 789, texts are charged at your standard network rate.

Pupil e-learning
Suitable for a variety of Key Stages, we have developed a variety of fun and interactive e-learning activities about epilepsy.
The activities can be used for either whole class teaching, individual learning or interactive whiteboard use.

Adult health services: transition guide
Changing from a children’s doctor to an adult doctor is known as transition. Depending on how things work in the area where you live, you’ll move to an adult clinic sometime between the ages of 16 - 18.
Some people have an adolescent transition clinic in their area to help them prepare for this move. But during this period everyone is expected to take more responsibility for their medical treatment. This could be:
-Making your own clinic appointments.
-Suggesting that you would like some time with the doctor on your own.
-Ordering repeat prescriptions, and following a treatment plan.
-Keeping your seizure diary up to date, and recording any side effects that might be a result of your medication.
-Between clinic visits, noting all the questions you’d like to ask your doctor or epilepsy specialist nurse.
None of this is difficult, but it will all help to reassure you and those around you, that you can manage your epilepsy as well as any other adult.

Service details
Categories Family support,Health Advice and Guidance
Gender both
Quality standards

Last updated: Jan 2, 2019 13:41

Services focused on particular beneficiaries do not imply that they are offered exclusively to these persons only.